Day 14 of 28

We had our clinic appointment yesterday. Everything was ok, Sebastian is fine, but his white blood cells are a bit too low for him to have received the chemo, so we have a delay. The chemo will make his counts drop pretty fast, so they want a "buffer" amount of white/red cells and platelets before they go ahead with the infusion. So I will keep writing "Day 14 of 28" until we have the go-ahead to continue on to the Day 15 protocol.

Thankfully, we have started the first reduction in doseage of steroids. Sebastian is eating ALL the time and is moodier than last week. He is soooooo puffy, and waddles around like a very pregnant woman with a huge stomach. I hope by the end of this week, those side effects will start to go away a bit. He wakes up in the night to eat, at least twice. Sometimes we have popcorn or crackers next to his bed so he will eat, and then go back to sleep on his own without waking anyone up. Michi's mom was here the past four days, and she was a great help. She was cooking rice, spaghetti, whatever the little guy wanted - and at all hours of the night.

Still waiting for Stella's first tooth!!!

The demise of our snowman.


Before going on our walk outside today.