Back in the Big House

Hi all,

Well, Sebastian was discharged after his methotrexate (MTX) therapy on Thursday night. He responded very well, and there were no complications. We had to wait until 10 PM to get the go ahead to be released, but we were all really happy to wake up in our own beds on Friday morning.

The nurse warned us that the next days would be the start of the MTX side effects, which include fatigue, skin rashes, loss of appetite and/or mouth sores.

Last night Sebastian woke up twice crying because he said his mouth hurt. He had already complained earlier in the day that orange juice hurt his mouth. And then this morning he would not eat, and barely drink. Throughout the day, his temperature rose, and then he started to get a rash on the back of his neck and arms.

So we called the hospital, and they said to come in. Which is fine with me, because if he even has a slight fever, I prefer that he is in the hospital and is being monitored. He vomited in the car on the way there, and felt really upset about that. He pretty much vomited up the only thing he drank today, which was some milk.

So now I am writing this post from the hospital, and Sebastian is already in his room watching Bob the Builder. He has been hooked up to the IV for fluids, and is getting some medicine for the mouth and throat pain. He didn't have a high enough temperature to start antibiotics, but they will keep checking on that.

I can't add any pictures because they are all on the computer at home, but I will try to do that later tonight. Michi will stay over tonight, and I will take the day shift tomorrow again.

Suz