Hi everyone,
I haven't sent any updates to Jenith, so I thought I should write an update myself. We have been home the last two weeks - no inpatient stays needed. We celebrated Easter at home. Sebastian is doing pretty well. He had a six day pause in the therapy because his blood tests showed a bit of liver stress, but it has recovered now, and he started the chemo again yesterday.
We are approaching the end of the first phase of the intensive treatment. In about 10 days, the first phase will end, and then there will be a 10-14 day break in chemo. The the next phase will start, which lasts 8 weeks. After this, there will be another 10-14 day break. Then finally (around the end of August) he will start the final intensive phase, which also last about 8 weeks. After these three intense phases are finished, the treatment will continue until Feb. 2009. But this will be low dose medicine, and Sebastian should be able to have a "normal" life, meaning he can go back to day care and do all the things he used to be able to do (take public transport, go shopping, the playground, etc).
During this intense phase, every time he gets sick, or has blood values that are not in range, he has to take breaks in the chemo. So if he is inpatient for two weeks and can't get the therapy, that means the whole process is delayed. It is quite common to have breaks and delays, so we try not to get worried when this happens. So far we have a total of 12 days delay, which I don't think is that bad. Every day we get closer to the end of the intense phase - I will be happy when it's over, although Sebastian is reacting very well.
Hope you all had a nice Easter holiday, and I will try to post more often when time permits. We are all a bit tired since we haven't been sleeping through the night (especially since Stella arrived). Suz
I haven't sent any updates to Jenith, so I thought I should write an update myself. We have been home the last two weeks - no inpatient stays needed. We celebrated Easter at home. Sebastian is doing pretty well. He had a six day pause in the therapy because his blood tests showed a bit of liver stress, but it has recovered now, and he started the chemo again yesterday.
We are approaching the end of the first phase of the intensive treatment. In about 10 days, the first phase will end, and then there will be a 10-14 day break in chemo. The the next phase will start, which lasts 8 weeks. After this, there will be another 10-14 day break. Then finally (around the end of August) he will start the final intensive phase, which also last about 8 weeks. After these three intense phases are finished, the treatment will continue until Feb. 2009. But this will be low dose medicine, and Sebastian should be able to have a "normal" life, meaning he can go back to day care and do all the things he used to be able to do (take public transport, go shopping, the playground, etc).
During this intense phase, every time he gets sick, or has blood values that are not in range, he has to take breaks in the chemo. So if he is inpatient for two weeks and can't get the therapy, that means the whole process is delayed. It is quite common to have breaks and delays, so we try not to get worried when this happens. So far we have a total of 12 days delay, which I don't think is that bad. Every day we get closer to the end of the intense phase - I will be happy when it's over, although Sebastian is reacting very well.
Hope you all had a nice Easter holiday, and I will try to post more often when time permits. We are all a bit tired since we haven't been sleeping through the night (especially since Stella arrived). Suz
